The Beat Batten Foundation is committed to raising awareness about Batten's disease, but also to raise money to fund research into this form of Child Dementia.
Batten's disease is a rare and fatal ...
Let us know how you can help!
Contact person
Stichting Beat Batten
#18243
Scan me or visit www.volunteer.deedmob.com/o/Stichting-Beat-Batten/opportunities/Laat-weten-hoe-jij-kan-helpen/18243 to join
Detailed description
Will you help us to raise awareness of Batten's disease and to raise money so that we can fund research into Batten's disease?
There is currently no treatment to inhibit, stop or cure Batten's disease. You can contribute to get closer to treatment so that these children can have a chance for a future without childhood dementia.
We are continuously looking for different volunteers, do you want to know how you can help us? Then contact us and we will discuss the possibilities together!
About Stichting Beat Batten
The Beat Batten Foundation is committed to raising awareness about Batten's disease, but also to raise money to fund research into this form of Child Dementia.
Batten's disease is a rare and fatal metabolic disease in children. Batten's disease is also called a form of Child Dementia.
Children with Batten disease are apparently born healthy. They often lose their sight from the age of 5. In addition, they have to deal with epileptic seizures, but also a decrease in their muscle strength, speech, motor skills, cognitive skills and memory. Children with this disease often die between the ages of 15 and 25. A treatment to inhibit, stop or cure the disease is not yet available.
