The Beat Batten Foundation is committed to raising awareness about Batten's disease, but also to raise money to fund research into this form of Child Dementia.
Batten's disease is a rare and fatal ...
Let us know how you can help!
Practical details
Volunteering • One-off
Contact person
Natasja van den Brink
#18304
Scan me or visit www.volunteer.deedmob.com/o/Stichting-Beat-Batten/opportunities/Let-us-know-how-you-can-help/18304 to join
Are you creative and full of ideas to help us raise awareness about Batten's disease and raise money to fund research?
We would like to get in touch with you to see how we can make a difference together in the fight against Batten!
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About Stichting Beat Batten
The Beat Batten Foundation is committed to raising awareness about Batten's disease, but also to raise money to fund research into this form of Child Dementia.
Batten's disease is a rare and fatal metabolic disease in children. Batten's disease is also called a form of Child Dementia.
Children with Batten disease are apparently born healthy. They often lose their sight from the age of 5. In addition, they have to deal with epileptic seizures, but also a decrease in their muscle strength, speech, motor skills, cognitive skills and memory. Children with this disease often die between the ages of 15 and 25. A treatment to inhibit, stop or cure the disease is not yet available.
