Stichting Beat Batten

The Beat Batten Foundation is committed to raising awareness about Batten's disease, but also to raise money to fund research into this form of Child Dementia. Batten's disease is a rare and fatal metabolic disease in children. Batten's disease is also called a form of Child Dementia. Children with Batten disease are apparently born healthy. They often lose their sight from the age of 5. In addition, they have to deal with epileptic seizures, but also a decrease in their muscle strength, speech, motor skills, cognitive skills and memory. Children with this disease often die between the ages of 15 and 25. A treatment to inhibit, stop or cure the disease is not yet available.