The Beat Batten Foundation is committed to raising awareness about Batten's disease, but also to raise money to fund research into this form of Child Dementia.
Batten's disease is a rare and fatal ...
Will you become our volunteer?
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Scan me or visit www.volunteer.deedmob.com/o/Stichting-Beat-Batten/opportunities/Will-you-become-our-volunteer/18255 to join
Summary
We are looking for volunteers who enjoy working for our FoundationDetailed description
What do you do as a volunteer for Beat Batten?
Volunteers play an important role in large and small campaigns that Beat Batten organizes every year throughout the country. We are therefore always looking for volunteers for various activities. For example, to be visible at events to call attention to Batten's disease. Think of manning a stall for the sale of a drink, a t-shirt, a water bottle or a fun activity. You can also support us in campaigns by collecting money with a collection box or by explaining to visitors the need for research. And if you like it, crawl into the Beba suit and hand out "hugs 4 Beat Batten"!
Furthermore, many schools, companies, (sports) clubs or associations find it pleasant to complete their campaign for Beat Batten with the arrival of a volunteer. In addition, you will receive a symbolic check, say a word of thanks on behalf of the foundation, or give brief information about the disease.
Do you want to help us as a volunteer and be the calling card for Beat Beatten? Let us know who you are, what you do, what you are good at and especially why you want to commit yourself as a volunteer for Beat Batten. Mail us your story at info@beatbatten.com
About Stichting Beat Batten
Batten's disease is a rare and fatal metabolic disease in children. Batten's disease is also called a form of Child Dementia.
Children with Batten disease are apparently born healthy. They often lose their sight from the age of 5. In addition, they have to deal with epileptic seizures, but also a decrease in their muscle strength, speech, motor skills, cognitive skills and memory. Children with this disease often die between the ages of 15 and 25. A treatment to inhibit, stop or cure the disease is not yet available.
