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The ME / CFS Stichting Nederland is committed to strengthening the position of patients with ME / CFS (chronic fatigue syndrome). We focus on ALL ME / CFS patients. Regardless of the severity of their ...
WellbeingPeople with disabilitiesChildren & youth
Lid Werkgroep Wetenschap
Organisation role · 4—5 hrs/Week
From home
WellbeingPeople with disabilitiesChildren & youth
Contact person
Kinga GomoluchAsk Kinga a question
ME/CVS Stichting Nederland
#49594
Scan me or visit www.volunteer.deedmob.com/o/MECVS-Stichting-Nederland/opportunities/Lid-Werkgroep-Wetenschap/49594 to join
Scan me or visit www.volunteer.deedmob.com/o/MECVS-Stichting-Nederland/opportunities/Lid-Werkgroep-Wetenschap/49594 to join
Summary
De Werkgroep Wetenschap houdt zich bezig met het lezen, verzamelen en verspreiden van informatie over recent wetenschappelijk onderzoek.Detailed description
Je houdt zelfstandig de wetenschappelijke ontwikkelingen rondom ME/CVS bij en brengt jouw bevindingen in de werkgroep. Gezamenlijk bouwt de werkgroep zo een archief op, dat gedeeld wordt met patiënten via diverse kanalen.
Wij zoeken mensen die
- affiniteit met zorg in het algemeen
- bij voorkeur enige kennis van ME/CVS
- Werk- en denkvermogen op HBO-niveau
- In staat zijn om complexe informatie te verwerken en te vertalen naar begrijpbare informatie
Wij bieden
- zinvol werk waarin je bijdraagt aan de verbetering van de positie en hulp aan ME/CVS-patiënten
- een warm nest waarin je gewaardeerd voelt
- mogelijkheid tot het volgen van cursussen
- onkostenvergoeding
What volunteers need
🗣️ Native language skills
What we will provide to volunteers
💸 Reimbursement of costs🤝 Extra supportAbout ME/CVS Stichting Nederland
The ME / CFS Stichting Nederland is committed to strengthening the position of patients with ME / CFS (chronic fatigue syndrome). We focus on ALL ME / CFS patients. Regardless of the severity of their illness, their origin, gender or age. Young people with ME / CFS receive extra attention from us. They still have a life ahead of them and deserve extra help.
We do this by:
- Aiming for broad recognition and recognition of ME / CFS as a very serious disabling physical disease
- offering (a platform for) contact with fellow sufferers
- Contribute with progress towards the cure of ME / CFS
- as a knowledge center for ME / CFS to contribute to the sharing of information, knowledge and experience
- contribute from our network to scientific research aimed at the cure of ME / CFS.
For this we focus on ME / CFS patients, their family members and relatives, healthcare professionals and policymakers. We continuously work to achieve our goals with dedication, independence, integrity and an open attitude. We have an inclusive, positive basic attitude. We look at what can still be done and what can be improved. We are optimistic and enjoy our work. Our bottle is always half full and never half empty.
Activities
Representing interests, offering fellow sufferers contact and providing information
We do this by:
- Aiming for broad recognition and recognition of ME / CFS as a very serious disabling physical disease
- offering (a platform for) contact with fellow sufferers
- Contribute with progress towards the cure of ME / CFS
- as a knowledge center for ME / CFS to contribute to the sharing of information, knowledge and experience
- contribute from our network to scientific research aimed at the cure of ME / CFS.
For this we focus on ME / CFS patients, their family members and relatives, healthcare professionals and policymakers. We continuously work to achieve our goals with dedication, independence, integrity and an open attitude. We have an inclusive, positive basic attitude. We look at what can still be done and what can be improved. We are optimistic and enjoy our work. Our bottle is always half full and never half empty.
Activities
Representing interests, offering fellow sufferers contact and providing information
